Collaborators
Context
Necrotizing enterocolitis (NEC) is a gastrointestinal emergency in premature newborns. Registry data is scarce due to fragmented documentation in unstructured neonatal records.
Objective
Building the first automated NEC registry pipeline. We extract structured clinical variables from records to advance research into risk factors, treatment, and prevention.
Methodology
Co-development with neonatologists using The Architect, The Extractor, and the DLP. Bound to the Zurich region for strict compliance (nFADP/GDPR).
Project Snapshot
Disease
Necrotizing Enterocolitis
Population
Premature and neonates in critical care
Data Source
Unstructured neonatal records
Languages
German · French · English
Variables
850 total (159 treated)
Tools
The Architect · Extractor · DLP
Output
Validated research-ready dataset
Status
Active — pilot in progress